The lull is back a bit - I'm still working on finding a new plastic surgeon, but with the plentiful and quick recommendations I received - all for "the best" surgeons, of course - I am confident that I will find a good fit to replace Dr. J and will soon feel like I actually have someone who is a part of my healing team, a partner in my care.
I have appointments with new plastic surgeons throughout the day on Wednesday and then I start chemotherapy on Thursday morning. So the long Labor Day weekend is now forcing a bit of a lull on me, and this time I am happy to just sit back and enjoy it.
I got to spend yesterday with my sweet baby boy. I can't believe he will be five years old in just a few months. His little brain is so amazing and creative. He's incredible with Legos. He got rewarded with a new set of Star Wars Legos yesterday and as he was putting them together, he announced, "I don't even have to use the instructions. I can use my brain as the instructions!" And he did. The starfighter looks awesome.
Greta wanted to go to the children's museum with Dave, but Fin wanted to stay home and play with me, so we got a much needed and overdue mommy/Finny day. It was perfect.
We played Lego Star Wars for a good part of the day, he curled up in my lap and asked for scary monster stories and we turned the bed into his house when he wanted to play kitty cat. He told me I was his owner, built himself a bed and house out of pillows and a laundry basket, made a tail out of a long necklace, hung a sign on the "house" with his name on it and drank milk from a bowl on the floor. He did this for over an hour.
And while I was having the great mommy day, I also got to use some pent up energy to have an impact on the house. I cleaned up the cancer room and our bedroom, reorganized my half of the closet and the linens in the armoire, and I washed and put away 9 loads of laundry. It was a very productive and fun day.
Turns out I’m sometimes really good with the lulls in my life after all.
I woke up a good three hours before anyone else in the house this morning. And I actually got a good night’s sleep, too; they all just slept in.
During those three hours to myself, I got to do some reading, think about my cancer and listen to some great music. And I realized that as I’m heading into this somewhat daunting week, the emotion I am most feeling right now is thankful.
I am incredibly thankful for my amazing children, for a husband who is working hard to support me through the roller coaster of this stupid illness, and for having my mom and sister close by and knowing they will be by my side in an instant should I ever need either of them for anything at any time of day. I’m also thankful for my dad who, although he is 1500 miles away, can always help me put my stress into perspective with a quick phone call and who reminds me that so much of this stuff is crap and not worth wasting my energy worrying about it.
I am thankful that my niece is healthy despite her premature entry to the world – and I’m thankful that she came early so she was already stable and home by the time I got my diagnosis. I am thankful I was able to support my sister and her family through the rough first weeks of Jillian’s life and that things have settled down for them a bit and I know I can count on their support now. I am thankful that my kids get to grow up close to their cousins. Watching the 2 yr olds play and have conversations with each other is incredibly entertaining.
I am thankful for a great job with really good health insurance. I am thankful for coworkers and supervisors who are supportive and helpful through this illness and who make sure I have the flexibility to work from home when needed and who have let me know my work and projects are covered any time I need to be out for doctor’s appointments, treatments or healing.
And I am hugely thankful for my friends. I have been blessed with an incredible support network and this last six weeks has really shown me how many amazing people I have in my life. I am thankful for my TMS cyber-mommy friends who have made sure I am always surrounded by their love and support. I am thankful for my tireless VL friends – I know a single day hasn’t passed in the last 6.5 weeks when at least one of you hasn’t contacted me, checked in, visited, called, or texted just to say you’re thinking of me and to ask if there’s anything you can do to help me more. You are truly wonderful people.
I am thankful for the high school, college and grad school friends who have gotten in touch after years of little contact just to let me know I’m in their thoughts or prayers, and I am thankful that so many people have added my name to their shirts in various Race 4 the Cure events, Relay for Life events or other fundraisers for cancer awareness and research. I am always honored to know you are thinking of me and wishing me well on this journey.
And as odd as it may sound, I am thankful that this disease has given me an excuse to spend time catching up with a few people who have always made my life more stable with just a phone call – Ray, Rachael, Steph, Allie, Chris – thank you to each of you for the hours on the phone just being normal, being my friend, not judging me, not lecturing me, always loving me no matter what, and for making me laugh until I hurt. You may all live very far away from me, but know you are never far from my thoughts and are always in my heart.
I am thankful for the strong and positive women I have met who have been down this road before me. I am sorry we have all had to experience this journey, but I know my travels down this road have been made easier with your support, advice, recommendations for care providers, and just seeing how normal life can and will be afterwards. I very much appreciate all the trinkets and totems you have shared from your own breast cancer experience and I really hope I never have a need to pass them on to anyone else I love. Laura, Robin, Deborah, Tammy – you have all shared so much with me and I appreciate your strength and openness.
I am thankful to have two very thoughtful and open female doctors on my cancer team. Dr. Jennifer O'Neill and Dr. Robin Obenchain have both been amazingly warm, comforting, informative and approachable throughout this whole experience so far. They both start and end every visit with hugs for everyone in the room. I don't consider myself all that huggy of a person most of the time, but the obvious compassion and concern that these two doctors have for their patients is very appreciated. Everyone warned me that cancer doctors tend to be cold and distant, to forget that there is a person around the cancer rather than just seeing the cancer itself - my breast surgeon and oncologist are two of the warmest, friendliest and most competent doctors I've ever had the pleasure of meeting. I am thankful to have them as partners on my healing team.
I am thankful for good music – this journal entry is brought to you by Mothersbaugh’s Canon by Mark Mothersbaugh (my close-your-eyes-and-just-breathe song since grad school), Glitter in the Air by P!nk, and pretty much anything by Jack Johnson. I am thankful for dancing and laughing until I hurt.
I am thankful for having learned how much I love running before I got sidelined by cancer. I am really looking forward to getting back to it and I hope to run through many more sunrises soon.
I am thankful for sunflowers, butterflies, hedgehogs, watermelons, dancing women, duckface and remote controls – all of which make my cancer-be-gone sanctuary a calm, healing space. I am thankful to have the space to curl up and rest when I need to, even if I don’t use it as much as some of you think I should.
And finally, I am thankful for all of the comments you all have left me here and on facebook. I know so much of what I write is just blathering, navel gazing, getting junk out of my head – but it means a lot to know there are people who care about me enough to read it and let me know you are here to support me.
I hope you all know how much you mean to me. I am thankful that I have today to try to let you know what an impact you have made in my life. I hope we all have many more healthy days to share with each other.
<3
-B-





